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Diseases

Genetic and Rare Diseases Information Center (GARD)

Cutaneous mastocytosis


Other Names for this Disease
  • Mastocytoma
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Treatment

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How might cutaneous mastocytosis be treated?

Although there is currently no cure for cutaneous mastocytosis, treatments are available to manage the symptoms of the condition. In general, it is recommended that affected people avoid things that trigger or worsen their symptoms when possible. Certain medications such as oral antihistamines and topical steroids are often prescribed to relieve symptoms. Affected adults may also undergo photochemotherapy which can help alleviate itching and improve the appearance of the patches; however, the condition is likely to recur within six to twelve months of the last treatment. People at risk for anaphylactic shock and/or their caregivers should be trained in how to recognize and treat this life-threatening reaction and should carry an epinephrine autoinjector at all times.[1][2][3]
Last updated: 2/23/2015

References
  1. Mastocytosis. DermNet NZ. September 2014; http://dermnetnz.org/systemic/mastocytosis.html.
  2. Mastocytosis. NORD. April 2014; http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/441/viewAbstract.
  3. Mariana C Castells, MD, PhD; Cem Akin, MD, PhD. Treatment and prognosis of cutaneous mastocytosis. UpToDate. October 2014; Accessed 2/23/2015.


GARD Video Tutorial

  • Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.

    Finding Treatment Information

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Cutaneous mastocytosis. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition. 
Other Names for this Disease
  • Mastocytoma
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.