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Diseases

Genetic and Rare Diseases Information Center (GARD)

Variegate porphyria


Other Names for this Disease
  • Porphyria variegate
  • VP
  • Porphyria, South African type
  • Protoporphyrinogen oxidase deficiency
  • PPOX deficiency
Related Diseases
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Research

On this page

Patient Registry

  • The Porphyrias Consortium is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with this condition through research. The Porphyrias Consortium has a registry for patients who wish to be contacted about clinical research opportunities.

    For more information on the registry see: http://rarediseasesnetwork.epi.usf.edu/registry/index.htm
Other Names for this Disease
  • Porphyria variegate
  • VP
  • Porphyria, South African type
  • Protoporphyrinogen oxidase deficiency
  • PPOX deficiency
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.