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Diseases

Genetic and Rare Diseases Information Center (GARD)

Von Hippel-Lindau disease


Other Names for this Disease
  • VHL syndrome
  • VHL
  • Von Hippel-Lindau disease
  • Von Hippel-Lindau syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Von Hippel-Lindau disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The VHL Family Alliance has teamed up with the National Disease Research Interchange (NDRI) to create a tissue bank to help scientists find ways of improving diagnosis and treatment of Von Hippel-Lindau syndrome.  To learn more about this tissue bank, click here.

Patient Registry

  • The VHL Family Alliance is actively involved in research to further the understanding of Von Hippel-Lindau disease. Research efforts currently encompass the development of a Patient Registry, involvement in Clinical Trials and the creation of a VHL gene mutation database. To learn more about ongoing research efforts, click here.
Other Names for this Disease
  • VHL syndrome
  • VHL
  • Von Hippel-Lindau disease
  • Von Hippel-Lindau syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.