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Diseases

Genetic and Rare Diseases Information Center (GARD)

Waldenstrom macroglobulinemia


Other Names for this Disease
  • Braddock-Carey syndrome
  • Lymphoplasmacytic lymphoma
  • Macroglobulinemia of Waldenstrom
  • Thrombocytopenia - Robin sequence
  • Waldenstrom's macroglobulinaemia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Cancer Society
    250 Williams Street NW
    Atlanta, GA 30329
    Toll-free: 800-227-2345
    Website: http://www.cancer.org

  • International Waldenstrom’s Macroglobulinemia Foundation
    6144 Clark Center Ave.
    Sarasota, FL 34238
    Telephone: 941-927-4963
    Fax: 941-927-4467
    E-mail: info@iwmf.com
    Website: http://www.iwmf.com/

  • Lymphoma Research Foundation
    8800 Venice Blvd, Suite 207
    Los Angeles, CA 90034
    Toll-free: 800-500-9976
    Telephone: 310-204-7040
    Fax: 310-204-7043
    E-mail: Helpline@lymphoma.org
    Website: http://www.lymphoma.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Braddock-Carey syndrome
  • Lymphoplasmacytic lymphoma
  • Macroglobulinemia of Waldenstrom
  • Thrombocytopenia - Robin sequence
  • Waldenstrom's macroglobulinaemia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.