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Diseases

Genetic and Rare Diseases Information Center (GARD)

West syndrome


Other Names for this Disease
  • Infantile spasm
  • IS
  • X-linked infantile spasm syndrome
  • X-linked infantile spasms
  • West's syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

My son, who will be 13 years old in July, has West syndrome.  I would like to find a doctor in my area who specializes in this condition.  Any help would be appreciated.  Thank you.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How can I locate specialists in my area to treat West syndrome?

A neurologist has the special training and experience to treat individuals with West syndrome.  The National Association of Epilepsy Centers has set forth criteria for registering as an epilepsy center in the United States.  You can find an epilepsy center near you by searching their website: http://www.naec-epilepsy.org/find.htm
Last updated: 6/6/2011

How can I find a genetics professional in my area?

To find a medical professional who specializes in genetics, you can ask your doctor for a referral or you can search for one yourself. Online directories are provided by GeneTests, the American College of Medical Genetics, and the National Society of Genetic Counselors. If you need additional help, contact a GARD Information Specialist. You can also learn more about genetic consultations from Genetics Home Reference.
Last updated: 7/15/2016
Other Names for this Disease
  • Infantile spasm
  • IS
  • X-linked infantile spasm syndrome
  • X-linked infantile spasms
  • West's syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.