Other Names for this Disease
- Familial Xanthomatosis
- Liposomal Acid Lipase Deficiency, Wolman Type
- ClinicalTrials.gov lists trials that are studying or have studied Wolman disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Lysosomal Disease Network is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with this condition through research. The Lysosomal Disease Network has a registry for patients who wish to be contacted about clinical research opportunities.