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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Rational Approaches to the Management and Control of Neurocysticercosis Based on Recent Advances, Wednesday, October 23, 2013 - Thursday, October 24, 2013
Location: Lima, Peru
Description: The goals of this conference are to incorporate recent published and unpublished research into rational approaches to the treatment and control of neurocysticercosis.
Calcific Neurocysticercosis, Inflammation and Epileptogenesis , Wednesday, October 23, 2013 - Thursday, October 24, 2013
Location: Lima, Peru
Description: The anticipated goals of the proposed conference are to incorporate recent published and unpublished research into rational approaches to the treatment and control of neurocysticercosis.
Formation of a Consortium to Develop Common Protocols and Procedure for the Study of Neurocysticercosis in North America, Thursday, November 04, 2010
Location: Atlanta Hilton, Atlanta, GA
Description: This planning meeting addressed the following goals: (1) development of a database and registry for neurocysticercosis seen in the United States; (2) formation of a consortium of a minimum of 6 sites and maximum of 12 sites willing and able to participate; (3) determination of what studies can be performed given the types of patient seen; (4) creation of an outline of protocols that all sites can reasonably follow; and (5) determination of administrative details. The plan or protocol developed will be presented to others who would find benefit in taking part in a study protocol.
Treatment of Neurocysticercosis, Wednesday, June 22, 2005 - Thursday, June 23, 2005
Location: El Pueblo Hotel, Lima, Peru
Description: Cysticercosis, the most common cause of adult onset epilepsy in the third world, is due to infection with the cystic larval form of the intestinal-dwelling tapeworm, <i>Taenia solium</i>. A conference on the treatment of neurocysticercosis was particularly opportune because the recent publication in the <i>New England Journal of Medicine</i> of a blinded, controlled randomized treatment trial of parenchymal cysticercosis unequivocally demonstrated a medical benefit of treatment. This study added to a body of evolving evidence that treatment is medically indicated. A conference to reassess the scientific bases of treatment, to determine what is known and not known, and to design trials or studies to answer questions was timely. The goals of this scientific conference were to critically evaluate the knowledge upon which treatment decisions are based in the various forms of cysticercosis; to define gaps in knowledge; and to suggest studies, trials, or approaches that are required to answer the most pressing questions. NEUROLOGY 2006;67:1120–1127
Workshop on Neurocysticercosis, Tuesday, April 15, 1997
Location: Boston, MA