Other Names for this Disease
- Reticuloendotheliosis familial with eosinophilia
- Severe combined immunodeficiency with hypereosinophilia
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- ClinicalTrials.gov lists trials that are studying or have studied Omenn syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Primary Immunodeficiency Diseases Registry (PIDR)
Web site: Primary Immunodeficiency Registry
- The Primary Immune Deficiency Treatment Consortium (PIDTC) is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with severe combined immunodeficiency, Wiskott-Aldrich syndrome, and chronic granulomatous disease through research. The Primary Immune Deficiency Treatment Consortium (PIDTC) has a registry for patients who wish to be contacted about clinical research opportunities.