Myotonic dystrophy type 1
Other Names for this Disease
- Dystrophia myotonica type 1
- Steinert disease
- Steinert myotonic dystrophy
- Steinert's disease
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- ClinicalTrials.gov lists trials that are studying or have studied Myotonic dystrophy type 1. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- In 2000, the National Registry for Myotonic Dystrophy (DM) and Facioscapilohumeral Muscular Dystrophy (FSHD) was developed at the University of Rochester in Rochester, New York with funding from the National Institutes of Health (NIH). It was developed to facilitate research by making available to investigators anonymous data on Registry members, by helping investigators recruit subjects into their clinical studies, and by providing educational materials to patients and family members.