- Dementia, frontotemporal, with parkinsonism
- Frontotemporal dementia with parkinsonism
- Frontotemporal lobe dementia (FLDEM)
- Multiple system tauopathy with presenile dementia
News & Events
ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
9th International Conference on Frontotemporal Dementias, Wednesday, October 22, 2014 - Saturday, October 25, 2014
Location: Vancouver, BC, Canada
Description: <p>The 9th International Conference on Frontotemporal Dementias (ICFTD)<span> </span>is held every two years and is the only regularly scheduled international conference devoted to Frontotemporal dementia (FTD), making it an important opportunity for FTD clinicians, researchers, trainees and caregivers from around the world to share knowledge with the goal of improving care for patients with this devastating neurodegenerative disease. This is a particularly exciting time in FTD research as significant recent advances in our understanding of the molecular basis of FTD now provide us with the foundation for the rational development of targeted therapies. It is anticipated that the 2014 conference will attract more than 600 international delegates.</p>
Third Genome Dynamics in the Neurosciences Conference, Sunday, July 18, 2010 - Thursday, July 22, 2010
Location: The Hilton Metropole, Brighton, England
Description: The goal of this meeting was to integrate basic processes of DNA damage signaling and repair and clinical aspects of neurological and neurodegenerative disease. The program was designed to bring together leading scientists with primary interests in DNA damage signaling with those working in specific related neurodegenerative disease areas as a means for integrating these fields. It was anticipated that this would generate insights into how normal processes of genome maintenance in the brain contribute to the prevention of a wide range of diseases.
FTD Workshop to Develop CDEs and Pathology Data Elements for Future Clinical Studies, Tuesday, February 02, 2010 - Wednesday, February 03, 2010
Location: Miami, Florida
Description: The goals of the workshop were to (1) establish a protocol for standardized collection of first and serial neurological and neuropsychological data on FTD patients within the interested ADCs; (2) establish FTD-specific pathology data elements and determine whether the ADC pathology protocol addresses these elements or modification is needed for a FTD-specific pathology module; (3) develop a plan to integrate FTD data into the NACC data structure and allow linkage to other ADCs; (4) develop a mechanism to roll out a new data plan within the ADC community; and (5) form a clinical task force for FTD to monitor collection of standardized data.