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Diseases

Genetic and Rare Diseases Information Center (GARD)

Ehlers-Danlos syndrome type 5


Other Names for this Disease
  • EDS 5
  • EDS V
  • EDS5
  • X-linked Ehlers-Danlos syndrome
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Treatment

GARD Video Tutorial

  • Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.

    Finding Treatment Information

Clinical Trials & Research for this Disease

  • The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
  • The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There are currently trials regarding connective tissue disorders. To see these trials, click on the link above.
  • The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There is a study titled Manifestations of Heritable Disorders of Connective Tissue which may be of interest to you. To find this trial, click on the link above.
Other Names for this Disease
  • EDS 5
  • EDS V
  • EDS5
  • X-linked Ehlers-Danlos syndrome
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.