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Diseases

Genetic and Rare Diseases Information Center (GARD)

Ehlers-Danlos-like syndrome due to tenascin-X deficiency


Other Names for this Disease
  • EDS due to TNX deficiency
  • TNX deficiency
  • Ehlers-Danlos syndrome, classic-like type
  • EDS, classic-like type
  • Ehlers-Danlos syndrome due to tenascin-X deficiency
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

Social Networking Websites

  • RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).

Organizations Providing General Support

  • Coalition for Heritable Disorders of Connective Tissue
    4301 Connecticut Avenue, Suite 404
    Washington, DC 20008-2304
    Telephone: 202-362-9599
    Fax: 202-966-8553
    E-mail: chdct@pxe.org
    Website: http://www.chdct2.org/index.htm

Other Names for this Disease
  • EDS due to TNX deficiency
  • TNX deficiency
  • Ehlers-Danlos syndrome, classic-like type
  • EDS, classic-like type
  • Ehlers-Danlos syndrome due to tenascin-X deficiency
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.