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Diseases

Genetic and Rare Diseases Information Center (GARD)

Wolffian tumor


Other Names for this Disease
  • FATWO
  • Female adnexal tumor of probable Wolffian origin
  • WAT
  • Wolffian adenoma
  • Wolffian adnexal tumor
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

I've had a recurrence of a wolffian tumor. Is there a way I can talk to other women with this condition. Also, is there any research studies enrolling women with this tumor?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What are wolffian tumors?

Wolffian tumors are rare tumors located anywhere along the length between the ovary and vagina in sites of remnant wolffian ducts. Wolffian ducts are structures in a developing embryo that get incorporated into the reproductive system in males and degenerate in females. Wolffian tumors are thought to have a low potential to become cancerous and tend to range from 0.8 to 25 centimeters in size.[1] Surgery is the recommended treatment. In a small number of cases, recurrences or malignancy have been been reported. Close follow-up is advised.[2]
Last updated: 4/13/2015

How can I find other women with wolffian tumor?

While we are not aware of a support group specifically for women with a wolffian tumor, you may find the following online networks to be helpful. You can register with these sites to search for other patients with a wolffian tumor and to allow other patients to find you.

The Genetic Alliance has partnered with Inspire.com to launch an online community for people with rare diseases called the Rare Disease & Genetic Conditions Support Community. This community connects medical patients, family members, caregivers, and professionals. Click on Rare Disease & Genetic Conditions Support Community to learn more.

RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.

In addition, the following group may be able to provide you with additional information on wolffian tumors.

Urology Care Foundation
1000 Corporate Boulevard
Linthicum, Maryland 21090
Telephone: (410) 689-3700 
Fax: (410) 689-3998 
Toll free within the United States:  (800) 828-7866
Email: info@urologycarefoundation.org  
Web site: http://www.urologyhealth.org/index.cfm 
Last updated: 4/13/2015

How can I learn about research involving wolffian tumor?

The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. No studies involving wolffian tumor are listed at this time, but check this site often for updates. To search for a study, use 'wolffian tumor' as your search term.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.

Patient Recruitment and Public Liaison Office (PRPL)
NIH Clinical Center
Bethesda, Maryland 20892-2655
Toll-free: 800-411-1222
Fax: 301-480-9793
Email: prpl@mail.cc.nih.gov
Web site:  http://clinicalcenter.nih.gov/

ClinicalTrials.gov provides a helpful guide for information about participating in a clinical trial. Resources for travel and lodging assistance are listed on the National Center for Advancing Translational Sciences Office of Rare Diseases Research (NCATS-ORDR) website, part of the National Institutes of Health (NIH). 

Last updated: 4/13/2015

References
  • Ramirez PT, Wolf JK, Malpica A, Deavers MT, Liu J, Broaddus R. Wolffian duct tumors: case reports and review of the literature. Gynecol Oncol. Aug 2002; 86(2):225-30. http://www.ncbi.nlm.nih.gov/pubmed/12144833. Accessed 4/13/2015.
  • Gupta AK, Srinivasan R, Nijhawan R. Female adnexal tumor of probable Wolffian origin.. Indian J Pathol Microbiol. Oct-Dec 2014; 57(4):620-2. http://www.ncbi.nlm.nih.gov/pubmed/25308022. Accessed 4/13/2015.
Other Names for this Disease
  • FATWO
  • Female adnexal tumor of probable Wolffian origin
  • WAT
  • Wolffian adenoma
  • Wolffian adnexal tumor
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.