Osteogenesis imperfecta Levin type
Other Names for this Disease
- Levin syndrome 2
- Osteogenesis imperfecta with unusual skeletal lesions
- Gnathodiaphyseal dysplasia
On this page
- The Brittle Bone Disorders Consortium (BBD) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research on Osteogenesis Imperfecta (OI). The goal of the consortium is to learn more about the disease, develop therapies, and to inform the public about the latest research and information about OI. The BBD has a contact registry for patients who wish to be contacted about clinical research opportunities and updates on the progress of the research projects.
For more information on the registry see: https://www.rarediseasesnetwork.org/registry/index.htm