Osteogenesis imperfecta type VI
- OI type 6
- OI type VI
- Osteogenesis imperfecta type
- SERPINFI- related osteogenesis imperfecta
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
2015 Collagen Gordon Research Conference and Gordon Research Seminar, Sunday, July 12, 2015 - Friday, July 17, 2015
Location: New London, NH
Description: The 2015 Collagen GRC program will include invited and platform presentations as well as posters on (a) new data and concepts about the genetics, chemistry, biology and pathology of collagens; (b) advances in closely related areas of research, such as cell-matrix interactions, developmental biology and diseases of connective tissues, and bioengineering, that are relevant to the collagen field; (c) new and emerging technologies and approaches that may be applied to the collagen field.
Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases, Thursday, September 11, 2014
Location: Hilton Americas, Houston, TX
Description: <p>This workshop, coordinated by the National Bone Health Alliance (NBHA) in partnership with the Rare Bone Disease Patient Network and with the support of the American Society for Bone and Mineral Research (ASBMR) and the United States Bone and Joint Initiative (USBJI) aims to: 1)Convene a multi-disciplinary group of experts including researchers, clinicians, and patients with rare bone diseases to advance our understanding of skeletal biology and encourage the development of novel therapies to improve outcomes for individuals with both common and rare bone diseases;<span> </span>2)Identify gaps in our knowledge regarding the biologic mechanisms underlying rare bone disorders and share effective research strategies in translational and therapeutic areas;<span> </span>3)Encourage broad participation both by holding the event the day before the ASBMR 2014 Annual Meeting and providing funding for a significant number of young investigators to attend; and 4)Disseminate the results broadly by publishing the proceedings of the program in a peer-reviewed journal.</p>
Assessing the Impact of Osteogenesis Imperfecta on Non-Skeletal Systems, Wednesday, April 18, 2012 - Friday, April 20, 2012
Location: Sheraton Gateway Suites, Rosemont, IL
Description: This meeting will focus on the impact of abnormal collagen on health in an effort to broaden professional awareness of the full spectrum of issues faced by persons with OI as they age. The goals are: 1)-to review current knowledge regarding the impact of OI on a wide range of bodily systems during the aging process, 2)-identify major information gaps, 3)-make recommendations to expand the OI research agenda. A Workshop Report will be compiled following the meeting in order to share these findings with health professionals and the OI community.
Improving Musculoskeletal Outcomes for Individuals with Osteogenesis Imperfecta, Wednesday, April 07, 2010 - Friday, April 09, 2010
Location: Sheraton Gateway Suites, Rosemont, Illinois
Description: The goals of this workshop were to (1) assess the state of knowledge regarding the musculoskeletal aspects of aging with osteogenesis imperfecta (OI); (2) explore the potential for new diagnostic and therapeutic techniques for OI; and (3) build a consensus on essential measures for documenting OI treatment outcomes.