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Diseases

Genetic and Rare Diseases Information Center (GARD)

Pleuropulmonary blastoma


Other Names for this Disease
  • Pulmonary blastoma
  • PPB
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Pleuropulmonary blastoma. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition. 

Patient Registry

  • The International Pleuropulmonary Blastoma Registry is a collection of physicians, scientists, and data analysts from many institutions who have been working together for 20 years to evaluate cases of pleuropulmonary blastoma and research this condition. To learn more about the Registry click on the link above.

    The International Pleuropulmonary Blastoma Registry
    Pediatric Oncology
    Children's Hospitals and Clinics of Minnesota
    2545 Chicago Ave. S., Suite 412
    Minneapolis, MN 55404
    Phone: 612-813-7115
    Fax: 612-813-7108
    E-mail: gretchen.williams@childrensmn.org
Other Names for this Disease
  • Pulmonary blastoma
  • PPB
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.