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Genetic and Rare Diseases Information Center (GARD)

Congenital myotonic dystrophy

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News & Events

ORDR Co-Sponsored Conferences

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
    Location: Building 31, 6C, Room 6, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
    Location: New Orleans, LA
    Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.

  • Gordon Research Conferences CAG Triplet Repeat Disorders and the associated Graduate Research Seminar, Saturday, June 22, 2013 - Friday, June 28, 2013
    Location: Waterville Valley Resort, Waterville Valley, NH
    Description: The 2013 Gordon Research Conference on CAG Triplet Repeat Disorders will bring together top scientists from around the world to discuss high-impact, interdisciplinary research on CAG Triplet Repeat Disorders. The objective of the conference is to promote scientific discussion and facilitate interdisciplinary exchange by bringing leading researchers in the field together with a broad range of experts representing; clinicians, diagnosticians, neurobiologists, pathologists, geneticists and molecular biologists.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • 8th International Myotonic Dystrophy Consortium Meeting, Wednesday, November 30, 2011 - Saturday, December 03, 2011
    Location: Sheraton Sand Key, Clearwater , FL
    Description: The 8th International Myotonic Dystrophy Consortium Meeting (IDMC-8) will be held at the Sheraton Sand Key Resort in Clearwater Beach Florida November 30 – December 3 2011. This year, the meeting will be preceded by the Outcome Measures for Myotonic Dystrophy on Wednesday November 30 (place website link here) and followed by the EMPOWER2011 Myotonic Dystrophy Family Conference . Participation to the Outcome Measures for Myotonic Dystrophy meeting is by invitation-only while EMPOWER2011 is open to all families living with myotonic dystrophy.

  • Translational Neuromuscular Research, Diverse Diseases, Convergent Themes, Monday, September 19, 2011 - Wednesday, September 21, 2011
    Location: Beaver Hollow Conference Center, Java Center, NY
    Description: The infrastructure for this conference was developed by the MSG, whose investigators have worked for the past 10 years to secure extramural funding and to develop outcome measures for clinical research/experimental muscle and other neuromuscular diseases. The goal of this conference is to help identify commonalities across therapy development in neuromuscular disease to help ensure that lessons learned in any one disease are disseminated across the neuromuscular community.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • Seventh International Myotonic Dystrophy Consortium Meeting, Wednesday, September 09, 2009 - Saturday, September 12, 2009
    Location: University of Wurzburg, Wurzburg, Germany
    Description: The primary goal of IDMC-7 was to bring together a diverse group of attendees (researchers, clinicians, other care providers, patients and family members, representatives of nonprofit funding agencies and industry, and members of advocacy groups) to discuss current research discoveries, new therapeutic approaches, and optimal clinical care for patients with myotonic dystrophy (MD).

  • 2009 Triplet Repeat Disorders Gordon Conference, Sunday, May 31, 2009 - Friday, June 05, 2009
    Location: Waterville Valley, NH
    Description: The top two priorities of this conference were training and the communication of cutting-edge science in the area of CAG triplet repeat disorders. The focus of this conference was on areas of rapid advancement and latest developments. Speakers were selected for their expertise, recent contributions to the field, and ability to provide lively presentations. The structured discussion leaders were instructed to focus on issues that cut across each presentation in a session.

Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.