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Diseases

Genetic and Rare Diseases Information Center (GARD)

Congenital myotonic dystrophy


Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Muscular Dystrophy Association (MDA)
    222 S Riverside Plaza
    Suite 1500
    Chicago, IL 60606
    Toll-free: 800-572-1717
    TTY: 1-800-572-1717
    E-mail: mda@mdausa.org
    Website: http://www.mdausa.org/

  • Myotonic Dystrophy Foundation
    1004-A O'Reilly Avenue
    San Francisco, CA 94129
    Toll-free: 86-MYOTONIC or 866-968-6642
    Telephone: 415-800-7777
    E-mail: info@myotonic.org
    Website: http://www.myotonic.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.