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Diseases

Genetic and Rare Diseases Information Center (GARD)

Amyotrophic lateral sclerosis-parkinsonism/dementia complex 1


Other Names for this Disease
  • Amyotrophic lateral sclerosis, Parkinsonism/Dementia complex of Guam
  • Guam disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


News


NCATS Co-Sponsored Conferences

  • NIH ALS Conference: Clinical Research to Find the Pathogenesis and Cause of ALS, Wednesday, September 07, 2011 - Friday, September 09, 2011
    Location: Tarrytown House Estate and Conference Center, Tarrytown, NY
    Description: This conference is designed to stimulate the development of collaborative research projects between amyotrophic lateral sclerosis (ALS) physicians and basic scientists. It is expected that conference participants will develop a consensus regarding current research gaps and recommended next steps to enhance patient-oriented research in ALS. The previous “Tarrytown 1” conference, which was held in 2003, resulted in the formation of a new ALS research group that facilitated the biobanking of ALS biospecimens. It is expected that the 2011 conference will have similar tangible results.

  • Third Genome Dynamics in the Neurosciences Conference, Sunday, July 18, 2010 - Thursday, July 22, 2010
    Location: The Hilton Metropole, Brighton, England
    Description: The goal of this meeting was to integrate basic processes of DNA damage signaling and repair and clinical aspects of neurological and neurodegenerative disease. The program was designed to bring together leading scientists with primary interests in DNA damage signaling with those working in specific related neurodegenerative disease areas as a means for integrating these fields. It was anticipated that this would generate insights into how normal processes of genome maintenance in the brain contribute to the prevention of a wide range of diseases.

  • Third NIH Workshop on Gaucher Disease and Parkinsonism, Thursday, April 08, 2010 - Friday, April 09, 2010
    Location: NIH- the Cloister, Bethesda, Maryland
    Description: Workshop goals were to (1) determine the appropriate human, animal, or cell-based models to better understand this correlation; (2) explore the mechanisms and/or pathways involved; and (3) establish international collaborations to enhance progress in the field and to make recommendations for future study.

Other Names for this Disease
  • Amyotrophic lateral sclerosis, Parkinsonism/Dementia complex of Guam
  • Guam disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.