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Genetic and Rare Diseases Information Center (GARD)

Carcinoma of unknown primary site, childhood

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News & Events

ORDR Co-Sponsored Conferences

  • Advancing Symptom Clusters Research on Rare Cancers, Wednesday, June 17, 2015
    Location: NIH Neuroscience Building, Bethesda, MD
    Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>

  • Rare Tumors Initiative Symposium Strategies to Develop Therapies for Rare Tumors: Small Numbers, but Big Opportunities , Wednesday, June 17, 2015
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The goals of this symposium are to increase communication and build networks between researchers working in rare tumors across NIH, and to get input from patient groups, industry, and the FDA on how to overcome the biggest hurdles in the development of therapies for rare tumors. The Rare Tumors Initiative at NCI, CCR will use this information to prioritize goals for the future and will prepare a white paper summary to help guide researchers worldwide.

  • Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
    Location: Bethesda, Maryland
    Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.

  • Immunotherapy in Pediatric Oncology: Progress and Challenges, Monday, October 11, 2010 - Tuesday, October 12, 2010
    Location: Texas Children’s Hospital/Baylor College of Medicine, Houston, Texas
    Description: Goals of this conference were to (1) enhance collaboration and cross-fertilization of ideas and approaches among this widely dispersed community; (2) provide opportunities for young immunotherapists to meet the “giants” in the field and thus enhance their careers; (3) provide the seeds for a collaborative network that would eventually represent a consortium of individuals working in this field, albeit focused on different pediatric tumors; and (4) bring together the community to address regulatory challenges in developing cell products for immune-based therapy, which will improve the efficiency of developing protocols that are acceptable to the Food and Drug Administration (FDA).

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.