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Diseases

Genetic and Rare Diseases Information Center (GARD)

Thrombotic thrombocytopenic purpura, congenital


Other Names for this Disease
  • Congenital ADAMTS-13 deficiency
  • Congenital thrombotic thrombocytopenic purpura
  • Congenital TTP
  • Familial TTP
  • Microangiopathic hemolytic anemia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation
    22 Prince George Drive
    Toronto, ON, M9A 1Y1
    Toll-free: 1-888-506-5458
    Telephone: 416 792 4656
    E-mail: Contact@AnsweringTTP.org
    Website: https://www.answeringttp.org/

  • Platelet Disorder Support Association
    133 Rollins Avenue, #5
    Rockville, MD 20852
    Toll-free: 87-PLATELET (1-877-528-3538)
    Telephone: 301-770-6636
    Fax: 301-770-6638
    E-mail: pdsa@pdsa.org
    Website: http://www.pdsa.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Congenital ADAMTS-13 deficiency
  • Congenital thrombotic thrombocytopenic purpura
  • Congenital TTP
  • Familial TTP
  • Microangiopathic hemolytic anemia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.