Other Names for this Disease
- CDG 1L
- ALG9-CDG (CDG-IL)
- Congenital disorder of glycosylation, type Il
- CDG syndrome type IL
- RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).