Other Names for this Disease
- Colon cancer, familial nonpolyposis
- Colorectal cancer, hereditary nonpolyposis
- Familial nonpolyposis colon cancer
- Hereditary nonpolyposis colorectal cancer
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On this page
- How to Get Involved in Research – A video developed by GARD Information Specialists that explains how you can find out about research for a rare disease.
- ClinicalTrials.gov lists trials that are studying or have studied Lynch syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Lynch Syndrome International (LSI) Web site lists Lynch syndrome clinical trials and patient registries. Click on the link above to view the list.
- Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition.
- The HEROIC Registry, Hereditary Cancer Research Champions is a patient centric registry for individuals and families with a Lynch Syndrome genetic mutation.
- ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
- NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.