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Scientific and Medical Conference about Barth Syndrome

Thursday, June 26, 2014 - Friday, June 27, 2014
Hilton Clearwater Beach Hotel, , Clearwater, FL

The main objective of the conference is translation of scientific advances discussed at this Conference into therapy for rare diseases like BTHS.  The strategy is to assemble interested physicians/researchers to communicate experimental results and clinical findings and stimulate new work, collaborations, and publications.  This Conference also provides a forum for critically discussing clinical advances or potential treatments.

Dr. Charlene Schramm, (301) 402-3798,

Co-funding Institute(s):
National Heart, Lung, and Blood Institute
Office of Rare Diseases Research

From the National Center for Advancing Translational Sciences

From the National Institutes of Health

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