March 1, 2021
Rare Disease Day at NIH was held virtually on Monday, March 1, 2021, from 10:30 a.m. to 5:30 p.m. EST.
Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway to address scientific challenges and to advance new treatments.
The goals of Rare Disease Day at NIH are to:
Demonstrate the NIH commitment to helping people with rare diseases through research.
Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
Initiate a mutually beneficial dialogue among public and private researchers, patients, patient advocates and policymakers.
Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
Put a face on rare diseases by sharing stories of patients, their families and their communities.
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