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About the RaDaR Program

The Rare Diseases Registry (RaDaR) Program, formerly known as the Global Rare Diseases Registry Data Repository (GRDR) program, aims to provide easily accessible advice for constructing and maintaining good-quality rare disease patient registries to enable therapeutics development.
The RaDaR website is under construction. Please sign up below or check back for new information as the site is updated.

Email Sign-Up

Sign up to receive email updates about the program.

Resources

A list of resources for registry owners:
NCATS Staff Contact: Eric Sid, MD, MHA
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