NIH Rare Disease ProgramsA select list of NIH-supported collaborative research efforts for rare diseases.
A clinical research network supported by NCATS' ORDR and several other NIH Institutes and Offices.NIH/NCATS GRDR℠ Program (Global Rare Diseases Patient Registry Data Repository)
The aim of the GRDR program is to develop a Web-based resource that aggregates, secures and stores de-identified patient information from many different registries for rare diseases, all in one place.Therapeutics for Rare and Neglected Diseases (TRND)
The TRND program in the NCATS Division of Pre-Clinical Innovation aims to encourage and speed the development of new drugs for rare and neglected diseases.Undiagnosed Diseases Network (UDN)
The Undiagnosed Diseases Network is an NIH-funded research study to improve diagnosis and care of patients with undiagnosed diseases.Bench-to-Bedside Awards
Rare diseases bench-to-bedside medical research projects designed to speed translation of promising laboratory discoveries into new medical treatments.