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Undiagnosed Diseases Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund. The UDN is made up of clinical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases.

For more information, see their pages on Frequently Asked Questions and How to Apply.

You can also call or email the UDN Coordinating Center to find out more about:
  • Participating in the UDN research project
  • Who is eligible
  • What to include in the referral letter
  • Status of your application
By Phone: 9am – 5pm ET
  • Toll-free from USA, Canada, and Mexico: 1-844-746-4836 (1-844-Ring-UDN)
  • From all other countries: 1-617-432-2344
By Email:  

GARD also has a guide called Tips for the Undiagnosed with suggestions on how to navigate through the process of trying obtaining a diagnosis.

Locate healthcare providers and researchers who have knowledge of your condition.

Navigate the process of trying to obtain a diagnosis.