Get In Touch

Patients, family members, and caregivers may contact GARD by phone or our contact form. Our Information Specialists provide personalized responses that are easy to understand, free of charge, and confidential.

GARD Information Specialists can help find information about: 
  • Rare diseases 
  • Finding specialists 
  • Patient organizations 
  • Organizations that may provide financial, disability, or travel support 
  • Clinical studies
  • International rare disease organizations
  • Support for caregivers
  • Resources for people who suspect they have an undiagnosed rare disease

We also encourage you to look at our Resource section below. These resources address common needs of rare disease patients and families, including contact information for rare disease centers outside of the United States.

Important: GARD provides information about genetic and rare diseases for your general knowledge and is not a substitute for a doctor's advice.
Phone
Available Monday through Friday
12 pm to 6 pm Eastern Time
(except Federal holidays)

Toll Free:

1-888-205-2311

Phone
Available Monday through Friday
12 pm to 6 pm Eastern Time
(except Federal holidays)

Toll Free:

1-888-205-2311

Contact Form
Send your questions to GARD using our contact form. 

Please allow 2 to 10 business days for us to respond.
Contact Form
Contact Form
Send your questions to GARD using our contact form. 

Please allow 2 to 10 business days for us to respond.

Resources

Many diseases impact the quality of life and financial stability of patients and families. The following organizations can offer assistance directly or can help find other resources. The organizations and resources are listed for information purposes only. Inclusion on this list does not reflect an endorsement by GARD or the NIH.