Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
What is the cause of my condition? And how many people get this? Can it be causing other side effects? See answer
Is this form of alopecia be reversible? Can the hair just grow back one day? See answer
My fiance has alopecia universalis. He has no family history of this condition. Recently, I read that the disease is hereditary. This worries me. Please help me understand our future children's chance of developing alopecia universalis. See answer
Is there a cure for alopecia universalis? See answer
I was born with alopecia universalis. I have recently had regrowth of thin sparse hairs. What can I expect from this condition? Will my hair ever grow back fully and can the condition be cured? See answer